“You know what’s the worst? Being a 16-year-old girl who loves a famous singer, not solely for his looks, but because you truly believe he is talented and devoted and you agree deeply with his message. Because no matter how intelligently and fully you can express that, people will assume you’re just a silly teenager who thinks a famous guy is cute”—Anthony Kiedis (via joshklingwaffle)
the fucking worst is when people are like “you hate people for having a different opinion than you!!!!” like im not shitting on this guy because he thinks pistachio ice cream is gross im shitting on him because he actually believes that i and people like me dont deserve basic human rights and respect and safety
we as a society need to start talking about abusive friendships, bc those exist and seem to be really common
and most people in them dont know how do deal w the abuse bc its normally emotional abuse which.gets delegitimized, and its a platonic relationship and not a romo or sexual one, so it gets delegitimized for that too
“To say that one waits a lifetime for his soulmate to come around is a paradox. People eventually get sick of waiting, take a chance on someone, and by the art of commitment become soulmates, which takes a lifetime to perfect.”—Criss Jami, Venus in Arms (via 13neighbors)
How the Logic of "Friendzoning" Would Work If Applied in Other Instances:
*Man walks into a store and finds employee*
Man:Alright, I've had enough. Why haven't you guys hired me?!
Employee:Uh...well sir, when did you put in your application?
Man:I never filled out an application.
Employee:Well sir, we can't consider you for employment if you've never filled out an application.
Man:No, that's bullshit, because I've been coming here for years now, and every single time I tell you all how much I love this store and how much I appreciate your customer service, unlike some of your other customers might I add!
Employee:Well, but that doesn't-
Man:AND I even told you that I didn't have a job!
Employee:But sir, that doesn't indicate to us that you would like a job at our store. And again, if you've never filled out an application, we can't consider you. Besides, we're not hiring.
Man:OH! Not hiring, HA! What a laugh. I see your store go through seasonal workers all the time. They come and go like nothing, but you won't consider me as a part-time employee even though I KNOW you've been looking for workers to fill positions? That's insane!
Employee:Sir, we've been looking to hire a few people for management positions. Do you have any management experience?
Man:Well no, but what does that matter?
Employee:...Well sir, that's what we're looking for. You won't be suitable for the position without management experience.
Man:Oh that's such a load of crap. You know, you'll be waiting around a long time for a manager if you don't lower your standards a little. Who cares if someone knows how to manage a store? I LOVE this store and I'm willing to work here, that's all that should matter to you.
Employee:That...doesn't make any sense.
Man:NO! I'm done. This is over. From now on, no more Mr. Nice Guy.
Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing.
Edna and “Cookie.” I think she was trying to play it cool.
My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver.
That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.)
ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.
May 16, 2014. I wanted a picture. Edna wanted breakfast.
In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33.
Us with mom before she died. (Obviously.)
As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome.
Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome.
In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street - NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners.
Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.”
Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this:
YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS!
But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story.
Edna refusing to go inside.
These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless.
For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.)
Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below.
But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry.
By the way, we were raised by our grandma. Edna and her were very close.
She’s dead, too. Surprise.
She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna.
So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs - I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”)
But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].”
He was one of the two caseworkers that contributed to the report I mentioned above, which also included this:
So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!
I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.
Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed.
Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.
That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding.
I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled.
“i wish i could tell you this every morning you awake; that you are enough. that you are an intricate, vibrant life. that every soft breath from your lips, and every timid heartbeat, is precious and beautiful.”—thedustdancestoo (via thedustdancestoo)